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LifeScienceHistory.com - Check us out on Instagram
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Texas Life Science Industry Directory
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Please note that we have a new site: LifeScienceHistory.com, "Where history is made daily" under development and
delayed by COVID-19, to be launched in 2023 replacing TexasLifeScience.com. Regrettably, we are working with reduced
staffing and the current industry directory is no longer being maintained, but will be replaced with a new and improved
directory upon the launch of the new site. We apologize for the inconvenience.
Beyond Batten Disease Foundation
| | | Phone: | (512) 275-2600 | Fax: | (512) 835-4687 | Year Established: | 2008 | Main Contact: | Mary Beth Kiser, President & CEO | | Other Contacts: | Danielle M. Kerkovich, PhD, Principal Scientist
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| Company Description | The Beyond Batten Disease Foundation is a 501(c)(3) nonprofit organization founded by Craig and Charlotte Benson of Austin, Texas after their then five-year-old daughter, Christiane, was diagnosed with Batten Disease, a fatal neurodegenerative disorder for which there is no treatment or cure. The mission of the Foundation is to eradicate Batten Disease and hundreds of other rare conditions like it through research and prevention. | |
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